The Show Must Go On (Wheels within Wheels)
Posted in Features on July-15-2007

By Salil Chaturvedi

“You never take into account my disability,” I was complaining to a friend who had booked movie tickets for us. The cinema hall was not very accessible which was to be expected, but what had got my goat was that our seats were way up towards the back. I was annoyed that my friend had not thought of choosing seats that were easier to access. The anger didn’t last long, as it never does with good friends. He carried me up to the seats and we enjoyed the show.

 

On the way back, he apologised for not thinking about the seats and said something that’s still fresh in my mind after fifteen years, “You know, one doesn’t think of you as a disabled person even though you are on a wheelchair. I just feel you’re the same as me.” At that time I retorted, “Sure, the fault is all mine!”

In reality, my friend’s admission was a big revelation to me. I thought of other times when I felt frustrated, helpless and therefore angry. One of my pet peeves with my parents had been that they would leave things out of my reach, shut doors with latches on the top rather than the ones at the bottom. I would fly into an indignant rage, “If you as my parents are not sensitised then what can I expect from the world?” I would exclaim, my anger tinged with heartbreak.

But that one remark from my friend put things into sudden perspective. The love and support of my parents, my brother, my relatives and friends has been instrumental in making me independent and confident. My parents’ attitude of you-can-do-anything-you-want has given me the strength to go out and achieve my dreams, whether it was playing wheelchair tennis in Australia and Japan, going out on holidays, deciding to marry, running a company of my own and more recently, acting in a television serial.

My friend had taught me that being disabled and thinking of oneself as disabled are two separate things. How you imagine yourself also influences others’ imaginings of you. I’ve also learnt to hang strings from top latches so I can pull them open.

The same friend and I had once gone to an Air Force Officers’ Mess to play billiards. We were teenagers growing up in an Air Force camp near Allahabad. Our fathers served in the Air Force and we would often go to the Officer’s Mess and spend hours playing billiards and snooker. This day, as we were exiting the billiards room, a senior officer almost bumped into me. He sprang back to avoid collision and as I passed him, he looked at my friend behind me, and with a sympathetic cluck of the tongue asked, “Polio?” Without pausing to think my friend replied matter-of-factly, “No, Salil.” We laughed heartily after that but today when I look back at this incident, I feel that only if most people took a leaf out of my friend’s book the world would be different. For one, Corporate India could learn from my friend to recognise the person and not look at the disability while hiring people.

Another incident that comes to mind involves my elder brother who is in the army now. After my accident, which left me with a spinal injury and my family in a state of shock, it took me a long while to find the strands of life again. During that period I was encouraged to try and walk with callipers with some support. My brother would sit on the wheelchair to lend stability to it and I would hold the pushing handles and walk slowly as he moved the chair. One evening, as we were doing this, my frustrations welled up and I started berating my brother because no one else was around. To my horror he simply got up from the chair, which left me with no support. I swayed uncertainly for a moment and then came crashing to the ground. His words resound in my years till this day, “Don’t think you’ll have it special because you have a disability.”

But the seeds of independence were sown much earlier. Within days of my accident, as I lay in the Intensive Care Unit of the Command Hospital, Lucknow, I was given a card signed by my father, mother and brother. It showed lively dancing girls on a stage with hands entwined behind their backs as they were kicking up one leg in a gay dance routine. One of the girls was missing from the row. The card simply said, ‘The Show Must Go On.’ I am certain that the card was chosen by my father, for I know his habit of examining cards in detail before deciding on the right one.

Thanks Dad, I’m still trying to keep the show going.

Salil Chaturvedi’s  motto in life : read, think and be merry.

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Comments:
Rajni on July 17th, 2007 at 12:29 am #

All it takes is for few people to believe in who you are rather than defining you by your disability. You are very fortunate to be surrounded by friends and family who know you. Of course, your tenacity shines through too!

Thank you for sharing your story. I wonder are you still living in India?

Salil Chaturvedi on July 17th, 2007 at 2:23 pm #

Thanks Rajni,
I am fortunate indeed. I do believe that how you imagine yourself affects others’ imaginings of you. Yes, I’m still in India. Sounds like the title of a novel - Still in India. I have a small firm that works with various grassroots organisations. Currently we are focusing our energies on interactive educational material for children.

Parvinder on July 17th, 2007 at 2:24 pm #

None of this comes as a surprise! I know this man and know for a fact that the view from a wheelchair is not all that defines him…there is more to it…one of them being that for him life is not a template…new spaces and meaning have to be discovered each day.

meena on July 17th, 2007 at 2:26 pm #

Salil,
You make a very important point - It is only when you think you are disabled that you become truly disabled. There is a lesson in it for every one of us. Most of us are “disabled” in certain ways, even if the “disability” might not be obvious. Kudos to you for your positive attitude. I am sure you are an inspiration to all whose lives you touch.
Thanks for sharing your experience.
Meena

Brinda Shah on July 17th, 2007 at 7:22 pm #

According to me a person is never physically disabled.. Disability of a person is in the mind.. What is there in u shall be shown in ur behavior.. Life is a mirror it reflects whatever u do.. So do what u want to show..

Rajni on July 20th, 2007 at 1:38 am #

Interesting “imagine yourself affects others’ imaginings of you”. Any thoughts on, it’s the society ‘s (i.e. friends and family) imaginings of a child with developmental disability that affects the self-confidence and hence the potential of a child, actually even the family?

Please don’t misunderstand me. Kudos to you and everyone who does not let disability come in their way. Tenacity and positive attitude are an important ingredient of the solution but not the solution. IMHO larger community too needs to do its part – provide the infrastructure and education, at least, so that a person with disability can have a quality of life, irrespective of their socio-economic status.
Here is food for thought Salil - middle school geography, history or physics curricula in simple language for individuals with developmental disabilty?

Salil chaturvedi on July 20th, 2007 at 11:06 pm #

Dear Rajni,

I tried figuring out your email id so I could have a conversation with you directly on the issues you mention. I couldn’t from this site, so I am responding to your comment, since it was addressed to me. having been involved with the disabiity sector for over two decades, and having worked with organisations that are shaping the nation’s thought on disability issues (including being asked for views by the Planning Commission) I agree that there are many steps that need to be taken by a variety of players - activists, NGOs, governments, disabled people, their families, educators, legislators, etc. I had delivered a lecture to a batch of IAS students at the IAS academy in Mussorrie on how they need to think of disability when they discharge their duties. Basically, changing their imaginings about disability, if you will. The fact that disabled persons are now studying at the academy has come about after fighting tooth and nail with the government about it. I have seen (and played a humble part) India’s disability movement change from a charity-based one to a rights-based one where disabled persons and their families are aware of their rights and demand them. A PIL submitted by me in the Supreme Court of India comes up for a judgement in September (hopefully) that should bring about change in the lives of disabled persons in India, estimated at 6-10% of the population. Will keep you posted about it.

I am a little embarrassed to put out such a long response on this forum. You could mail me directly on my email id: sal_chat@yahoo.com. I’ll be happy to share my views on subjects that you mention.

Shefaly on August 2nd, 2007 at 10:22 am #

Very interesting. From what I read, Salil, you have been fortunate to benefit from a very supportive ecosystem where self-reliance and self-confidence as well as active role in life were possible.

I am going to cross-post this link on a post I wrote on the Indian Economy blog. The title was ‘Does Disabled have to mean Invisible?’, and you can read it on:
http://indianeconomy.org/2007/07/31/502/

If you follow the responses and the empty argumentation that misses the point of the post altogether, you will see a very different side to this debate.

What do you think?

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